Answers to Help You Understand Idiopathic Scoliosis
Scoliosis is a multi-faceted, genetic condition that can be confusing to both parents and children. Many questions arise when you learn that your child has scoliosis, especially if you don't have it yourself. Below are some of the most frequently asked questions we hear at our ScoliSMART® Clinics.
- What is scoliosis?
- If I have scoliosis, will my child get it?
- My child was diagnosed with adolescent idiopathic scoliosis (AIS) – what should I do?
- What is ScoliScore™?
- How has scoliosis been treated historically?
- What is a Cobb angle?
- How do ScoliSMART® doctors treat scoliosis differently?
- Will my child's scoliosis progress?
- Why is early stage scoliosis intervention so important?
- What activities should scoliosis patients avoid?
- How should I sleep if I have scoliosis?
What is scoliosis?
Scoliosis is a condition that affects the neuromuscular system, causing the spine to bend in a C-shaped curve or S-shaped curve. About 80 percent of cases are adolescent idiopathic scoliosis (AIS), which means of unknown cause. AIS affects 2-3 percent of children. It's most common in girls age 10 and older, yet boys get AIS, as well. Your child may not have obvious signs or pain if scoliosis is detected in its early stages.
For more information, see our page dedicated to answering "What is Scoliosis?"
If I have scoliosis, will my child get it?
Scoliosis runs in families, so your children have a higher chance of developing scoliosis if you have it. While you cannot outright prevent scoliosis, you can watch for the signs while they are young and during growth spurts. Some signs of early stage scoliosis are:
- One leg longer than the other
- Shoulders hang unevenly
- Eye or hip line is uneven
- Forward head posture
- A rib hump
My child was diagnosed with adolescent idiopathic scoliosis (AIS) – what should I do?
Your doctor's advice may have been to "watch and wait" if your child has a mild curve measuring less than 20 degrees. We hope that the scoliosis was diagnosed in this early stage, because early intervention can stop scoliosis progression and reduce curves, often to less than 10 degrees. Many doctors don't consider a curve measuring less than 10 degrees to be scoliosis.
We recommend you:
- Get a ScoliScore™ risk assessment test and a neurotransmitter test for your child. The first predicts the probability of progression. The second detects chemical and hormonal imbalances that contribute to progression.
- Talk to us about ScoliSMART® Small Curve Camp to start Auto Response Training exercises. Learn more about these exercises below where we explain our unique approach to scoliosis treatment.
What is ScoliScore™?
ScoliScore™ is a genetic test that predicts curve progression of AIS. It tells us the probability that your child's curve will reach extreme proportions of 45 degrees or more. It has also shown doctors that the probability for extreme advancement of AIS is very low.
How has scoliosis been treated historically?
Observation, bracing and surgery are the three most common treatments for scoliosis. Often, doctors will recommend monitoring curves that measure less than 25 degrees, scoliosis braces when curves reach 25 degrees, and surgery if curves progress to 40 degrees or greater. It is not the intention of ScoliSMART® doctors to condemn the efforts of sincere and caring medical professionals who have dedicated their lives to helping people with scoliosis, but we cannot support any of these historic treatments because they all have poor outcomes.
Observing a mild curve simply allows time for the curve to worsen. The wait and watch period of six months or a year is often stressful on you and your child because you want to be proactive. We do, too. We opt to start non-invasive scoliosis Auto Response Training exercises as soon as possible.
Bracing holds your child's spine straight during the 18-23 hours a day it's worn. This rigid treatment, however, causes muscles to atrophy and joints to be still and sore. Scoliosis braces often cause pain and breathing difficulty in children who were pain-free and breathing perfectly fine before using one. Additionally, bracing doesn't stop scoliosis progression. Often, a patient's scoliosis curve quickly gets drastically worse when the brace treatment ends.
Spinal fusion surgery is the treatment we disagree with most. It's invasive, has severe complications, and causes disability in 40 percent of people within two decades, according to medical studies. It's an especially poor choice for teens whose spines are not yet developed.
What is a Cobb angle?
The Cobb angle is a two-dimensional angle a doctor draws based on an x-ray, MRI or CT scan. The Cobb angle fails to give doctors all the necessary information, however, because it's a two-dimensional measurement of a three-dimensional spine. A Cobb angle doesn't account for spine rotation. Newer methods of evaluating your child's spine structure give us more reliable information. These include methods such as the Scoliometer and both the Nash-Moe and Perdriolle measurements for vertebral rotation.
How do ScoliSMART® doctors treat scoliosis differently?
ScoliSMART® doctors do not recommend monitoring mild curves, scoliosis bracing or surgery, primarily because none of these treatment options has great outcomes. We recommend your child start neuromuscular retraining immediately, regardless of the curve measurement. Our proactive treatment is a step-by-step process that creates new, subconscious muscle memories.
We use an innovative process and equipment to unlock the spine, reduce the curve rigidity and retrain the brain to hold the spine straighter automatically. Programs are catered to each child or adult because every curve is different. Our goal is to stop scoliosis advancement and reduce the curvature without pain.
Will my child's scoliosis progress?
The chances your child's scoliosis will progress are much lower when the curve is mild, measuring less than 20 degrees. The probability of progression with mild curves is 22 percent. The chances of progression skyrockets to 68 percent after your child's curve reaches 20 degrees. The chances scoliosis will advance rises to 90 percent once the curve exceeds 30 degrees. For this reason, the ScoliSMART® doctors emphasize the importance of early intervention when possible.
Why is early stage scoliosis intervention so important?
Starting neuromuscular retraining as early as possible provides the best outcomes. Plus, the probability of scoliosis progression increases exponentially as the curve becomes more severe, as mentioned above. We want to keep your child's curve from reaching 20 degrees — or reduce it to less than 20 degrees — whenever possible.
What activities should scoliosis patients avoid?
One-sided sports, deep backbends and activities that alter the spine's position can trigger scoliosis progression. (They won't cause the condition, however, because it's genetic.) We recommend limiting activities ranging from high-impact running to frequent texting. It's important to let your child be a child, while protecting the spine.
How should I sleep if I have scoliosis?
A high-quality firm or medium-firm mattress is ideal if you have scoliosis. We recommend you don't sleep on your stomach, which puts stress on your neck and spine. Using small pillows or rolled towels under your rib cage or shoulders to support your curve while you sleep on your side may be the most comfortable. You may also put a pillow or rolled towel between your knees.
Each scoliosis case and curve is different, so you are likely to have more questions. To learn more about our treatment options, click on any of the five buttons that follow.